My daughter recently had an amnio that showed her son has Mosaic MonosomyX, her OB says this condition is also referred to Noonans Syndrome. I would like to hear from anyone that can share information on this syndrome with us. Regards to all, Kathi & Cecily
Kathrynne Higle <email@example.com>
Laredo, TX USA - Friday, May 06, 2005 at 10:20:42 (EDT)
I've missed you both times you've come to Allen, but I plan to meet you in the Fall. I have two boys on the Autism Spectrum and want to thank you for the work you are doing to raise awareness and help us cope.
Allen, Texas USA - Wednesday, April 27, 2005 at 20:25:10 (EDT)
I met you at Camp John Marc a few weeks ago at Camp TCU. I really enjoyed your presentation and am reading "Traveling Grace" right now. I spoke to you about a manuscript I've started about our journey with our daughter's Traumatic Brain Injury. Blessings, Kerri
Kerri Everett <firstname.lastname@example.org>
Stephenville, TX USA - Wednesday, April 20, 2005 at 04:17:04 (EDT)
Hello Martha, I would you to thank you for the excellent list of characteristics regarding AS that you've put together. It has helped me alot to recognize, identify and perhaps also admit things about myself. I am what one might call a "residual Aspie", I've never been diagnosed and probably never will be. The reason for this is because I've always been interested in social interaction, languages and other people, so in a sense I've worked very hard to get past the obstacles that can be so very overwhelming for people of my sort :)
Unlike some others, you focus on the positive things about having AS and you seem use it as a way to create motivation, self-understanding and self-acceptance which can and will help many with AS. It certainly helped me. So, keep up the good work and good luck in the future.
- Per aspera ad astra (through difficulties to/towards the stars)
Pether Ärlemalm <email@example.com>
Östergötland NORRKÖPING Sweden - April 19, 2005
Thank you for all you have done for all our children. You are an inspiration to us all. I have so many questions, with your direction I may find some answers. Everytime I meet you I feel there is hope. Thanks you, Treva Leber
Treva Leber <firstname.lastname@example.org">
Colleyville, TX USA - Friday, April 15, 2005 at 22:44:26 (EDT)
Your life and good works sound interesting,worthy, world changing / Keep it Up! Bless you......Janie
hereford, texas USA - Saturday, April 09, 2005 at 16:20:19 (EDT)
I also have a child with noonans and it would be great if we could talk about it . I have a little girl .She is 5 yrs old and very sweet but a hand full . Someone to talk to would be great. thanks Lisa
gloucester, va USA - Monday, April 04, 2005 at 23:33:25 (EDT)
I am guardian of Raquella who is diagnosed NS. We are have difficulties settling her into Secondary school. She can't cope with the curriculm and is bullied and teased, any recomendations
St Albans, Herts UK - Monday, March 21, 2005 at 14:24:09 (EST)
This site is very useful. Keep up this excellent work - very good. krankenversicherung vergleich here it is krankenversicherung vergleich thank you.
krankenversicherung <krankenversicherung vergleich>
Russia, ru http://www.nrg.to/krankenversicherung/ - Thursday, March 10, 2005 at 20:24:08 (EST)
Very Cool Site - Thanks
Ft Worth, TX USA - Saturday, March 05, 2005 at 00:22:37 (EST)
I have the most wonderful 20 month old son who was diagnosed with NS at 11 months. He is currently receiving PT,ST,and OT and is progressing well. An excellent resource I found was at Cook Children's genetic clinic whose medical director is Dr.Kuchcolich. I am blessed and honored that God chose me to be the mother of such a special and unique child.
Lori Dick Williams <DickAllianceaol.com>
Keller, TX USA - Friday, March 04, 2005 at 19:38:59 (EST)
Im sorry to hear about this. I am researching this disorder for a school project and I had no idea. Best of wishes to you.
mi USA - Friday, March 04, 2005 at 10:10:01 (EST)
I have a 13 yr. old boy with a partial Trisomy of Chromo. 2. It does not have an identifying syndrome name. He is experiencing alot of difficulty in school due to physical changes and the inability to react to social queues. He is currently in a behavior intervention class due to his "meltdowns" but it doesn't seem to help. He is picking up more bad behaviors than positive. I feel that the school administrators don't quite "get" my son. They sometime set him up for failure when expecting him to sit in a hallway and keep still in order to calm down. I wish I knew of a school that would better serve him.
Tricia Pryor <email@example.com>
Bedford, Texas USA - Tuesday, December 14, 2004 at 15:23:16 (EST)
i have been thinking about looking for other parents of kids with noonans. im also looking for more information about it. x x Georgina (uk)
milton keynes, bucks uk - Monday, November 29, 2004 at 12:56:56 (EST)
Great web site.
Here is my web site.
Matthew Loscialo <firstname.lastname@example.org>
lebanon, NJ USA - Friday, November 26, 2004 at 01:10:59 (EST)
I truely enjoyed you talk at Advocates for Special People tonight. Thank you so much for
being there and for all the information you gave us. I hope you and your family can find the time to join us at our Christmas Party. We would surely love to have you there!
Also, Please add me to your mailing list!
Marilyn Priddy <email@example.com>
Arlington, Tx USA - Thursday, November 11, 2004 at 21:59:26 (EST)
Obtained your name from Dr. Silas, Glen Oaks Hospital, after he diagnosed my 9yr old with Asberger Syndrome. Just looking for help and support in my area.
wanda haseley <firstname.lastname@example.org>
Plano, Tx USA - Thursday, November 11, 2004 at 12:59:25 (EST)
After our first delightful phone conversation, I found myself amazed with the opportunity to meet this friend and teacher of my friend, Gail. How precious are God's children in His eyes and how gently He leads us to love each other. Thank you, Martha Kate from the bottom of my heart for all the love you give that comes from the inexhaustible Source!
Kaye Anderson <email@example.com>
Bedford, TX USA - Saturday, November 06, 2004 at 18:04:59 (EST)
it was amazing meeting you at the TNSSG meeting, you are one inspirational lady and your wonderful daughter, Kate. I feel priviliged to have met you finally, though wish we could have spent longer catching up!
Thanks for all you do
london, united kingdom - Sunday, October 10, 2004 at 16:56:52 (EDT)
Thanks for the info on Noonan's. I will pass it on to my patient family.
Kristin Van De Vusse
Grand Rapids, MI USA - Wednesday, September 29, 2004 at 14:56:46 (EDT)
hello I have a 13 yr boy with AS I WAS FIRST TOLD HE HAD AS WHEN HE WAS IN 3RD GRADE AND IT TOOK ME ALONG TIME TO SAY TO MYSELF YES HE HAS AS. HE IS A VERY SMARY LOVING LIL BOY BUT HE HASA LONG STRUGGLE AHEAD OF HIM. I AM GLAD TO SEE SITES WITH OTHER PEOPLE WITH KIDS WITH AS OR I WOULD FEEL EVEN MORE ALONE THAN I ALREADY DO. IF ANYONE EVER FEELS ALONE AND NEEDS TO YAP ABOUT THERE CHILD OR LIFE FEEL FREE TO EMAIL ME :) I HOPE THIS DOESNT SOUND TOO NEEDY LOL
Tucson, arizona USA - Monday, September 27, 2004 at 05:32:24 (EDT)
God bless you all. Thank you for the information in the site.
USA - Monday, September 27, 2004 at 01:49:33 (EDT)
Martha Kate <firstname.lastname@example.org>
Euless, TX USA - Sunday, September 26, 2004 at 18:38:41 (EDT)
Loved the web site. Found it by accident from a link from Canter on line education site (completing their course on Autism for parents). Loved your story - so similar to mine. Nice to know you're not alone.
Pat Kingston <email@example.com>
Brighton, West Sussex UK - Sunday, September 26, 2004 at 18:11:40 (EDT)
Your site was so interesting and informative I had to call a friend to tell her about it. Great work!
Girl Next Door <firstname.lastname@example.org>
Baden-Wurttemberg, Stuttgart Germany - Saturday, September 25, 2004 at 20:03:55 (EDT)
Very nice and useful website.
Miami, Florida USA - Monday, September 13, 2004 at 00:22:28 (EDT)
Your website has been great! Please e-mail me. I am looking for a place to take my 7 year old daughter for a dx to confirm my thoughts. Thanks!
Diana Lehr <email@example.com>
N. Richland Hills, TX USA - Thursday, September 09, 2004 at 21:54:48 (EDT)
17 year old son diagnosed at age 9 with AS, I also have a 13 year old son who does not have AS.
Cindy Gaccione <firstname.lastname@example.org>
Westerly, RI USA - Tuesday, August 17, 2004 at 12:31:22 (EDT)
I'm 48 with aspergers syndrome??? i don't have any AC/DC or whatever, the latest buzz word is?????? up to present either. although i'd be glad if someone could do a song about myeslf, or aspergers syndrome in general???
check out my latest site for info:
3 mp3 downloads of songs about myself are on:
i'm also now REAL SLIM, without my haloperiodol.
instead of being like FAT MAN AND THE DIABETIC DUO: david c. miedzianik say..med-gen-nick:
ps: i have either autism, or aspergers syndome:
pps: not, really sure about it, at present???
ppps: DR ELIZABETH NEWSON said, i've got aspergers syndrome??? so she should know??
David Christopher Miedzianik <email@example.com>
Denver, Colorado USA - Sunday, August 15, 2004 at 15:37:23 (EDT)
Your website is fantastic! I've just discovered I have AS a couple weeks ago and I've been trying to learn everything I can about it! Canada is still in the dark ages about this condition. I've been so releived and so much more confident now that I understand what makes me so different and I want to do something special to make the public aware of AS in a positive way!!
Margaret Franklin <384 Elmgrove Avenue>
Oshawa,, Ontario, Canada - Tuesday, August 03, 2004 at 09:00:43 (EDT)
I am caring for someone who supposedly has Noonan's Syndrome. I know so little about it, is there a guide to this syndrome that's not too difficult to understand.
Alison Brown <firstname.lastname@example.org>
Camborne, Cornwall England - Friday, July 23, 2004 at 16:26:06 (EDT)
My son is 7 years old and has been diagnosed with Asperger Syndrome. He gets very angry and does things I do not understand. His attention span is limited and refuses to follow directions unless a consequence is told. At school he continually has behavior problems with other children. I am worried and wonder what kind of life he will have.
Ruston, LA USA - Tuesday, June 22, 2004 at 14:29:38 (EDT)
Hi, I'm a stay home single mom with a son who was diagnosted with PDD-Nos. I'm glad there is other's out there that know how it is. My son is now six and changes set him off into tantrums and they scare me at times I always think his going to hurt himself. I all so can't find someone to watch him if I go out.
Julie Caissie <email@example.com>
Bristol, NH USA - Sunday, June 20, 2004 at 18:05:40 (EDT)
I know a 19 year old who has Noonans syndrome and I would like to learn more about it, as much as possible.
Andrea Bledsoe <AndreaBpan@yahoo.com>
Dayton, Oh USA - Friday, May 07, 2004 at 23:13:38 (EDT)
I would like to know if there is a place where I can donate money for research on Noonan's Syndrome. I am a speech therapist, and I was working with a 6 month old baby that had Noonan's, but unfortunatly she passed away on Fri. I would like to donate money in her name. Any info you can give me would be very helpful. thank you
Margate, Fl USA - Wednesday, April 28, 2004 at 18:37:30 (EDT)
GREAT web site, and as always you are an inspiration to thousands. Thank you for all the work, insight, and love you give to others. I read all your work. Stay in touch with us. Hello to Kate!
Gilmer, TX USA - Friday, April 23, 2004 at 11:26:02 (EDT)
My daughter is 11 with Asperger's. Recently pulled her out of public school and am homeschooling. it's been such a good move for all of us!
Cyndy Goldman <firstname.lastname@example.org>
Corte Madera, CA USA - Thursday, April 22, 2004 at 17:02:46 (EDT)
My daughter has been diagnosed with Asberger's Syndrome. She does so many things that I can't understand. And stays mad all the time. Need help. Gerlene
Gerlene Russell <email@example.com>
Hot Springs, Ar. USA - Saturday, April 17, 2004 at 09:37:11 (EDT)
My nine year old daughter has just been diagnosed with Asperger Syndrome and I am in search of answers. Your website has given me direction. Thank you!
Winnipeg, Manitoba Canada - Thursday, April 15, 2004 at 13:35:17 (EDT)
just hi and e-mail me
katie ams <firstname.lastname@example.org>
bangor, maine USA - Tuesday, April 13, 2004 at 11:48:15 (EDT)
My two boys aged 9 and 7 have Aspergers and I am struggling with prejudice from remedial schools who refuse to accept them as they need 100% SUCCESS RATE?? I cannot belived the discrimination. I need advice on this issue.
Aggela Salbego <email@example.com>
Johannesburg, South Africa RSA - Monday, April 05, 2004 at 15:55:17 (EDT)
You're busy, busy as always. gt
Glenda Sue Tiner <firstname.lastname@example.org>
TX USA - Monday, March 01, 2004 at 23:34:42 (EST)
great website! i know exactly what you mean about the
holidays. i have learned through years of trial and error that it is
not necessary to appease my entire family(in'laws) at the expense of
my son. simplicity is better!!
nj USA - Saturday, January 17, 2004 at 15:46:00 (EST)
My daughter was diagnos as PDD, she is soon to be 4 years old
and I wanted to find out what how to control her behavior, with out
Ohio USA - Wednesday, December 31, 2003 at 20:16:42 (EST)
What a wonderful Family. God has blessed me with their love.
All four are loving and giving people reaching out and caring for
other.I love them dearly.
Texas USA - Friday, December 19, 2003 at 18:35:57 (EST)
I have a 20 month old son that has noonans syndrome, and i was
just trying to find out some more facts about it. I think your
wedsite is wonderful. Thank you, Melissa Zonker
Melissa Zonker <email@example.com>
Ohio USA - Saturday, November 08, 2003 at 19:13:46 (EST)
Martha Kate - I heard you speak at ASCC on Tuesday, 11/4/03. I
was nice to know that all the things I am currently going through
with my 9-year old daughter; you have been there. I found myself
nodding a lot. Taylor is my special gift from God, and she's perfect
in every way. Thanks, Julie Thomas
Texas USA - Thursday, November 06, 2003 at 17:14:46 (EST)
from just dad to just mom as I have just said to you in
person. You are doing a good job.
City, Texas USA - Tuesday, October 28, 2003 at 20:38:05 (EST)
I DEY HERE
USA - Sunday, October 26, 2003 at 14:59:47 (EST)
My dear friend Stephanie Garibaldi, Sgt. Shriver's assistant,
recommended your site. My 3 and 1/2 year old son has been diagnosed
with PDD/Asberger's. Thank you for finding the time to assist other
parents with special needs children. I'm looking forward to reading
NJ USA - Monday, October 06, 2003 at 11:35:25 (EDT)
Thank you so much for all the wonderful information at the
Social Skills Seminar! It was such a positive experience. Jonathan
said that he had a great time and really learned some very useful
TX USA - Sunday, October 05, 2003 at 02:49:25 (EDT)
I thoroughly enjoyed reading these statements. I haven't had
the privilege of reading one of your books, as yet. As I taught
Special Ed in Jr Hi and High School, I was involved with Special
Olympics for several years. Kay Luce, Portales, NM
Kay Luce <firstname.lastname@example.org>
NM USA - Monday, September 29, 2003 at 03:40:56 (EDT)
ive got a 28 month old son who was operated on at 6mths for
double outlet right ventrical asd and vsd he had to have medication
to keep himalive before this as he was so week and he had to try and
put weight on him he only weighed 9lb at six mths but they had to
operate any then they kept tellying me he had dysmorphic features he
also had feeding problem and still does had week limbs potosis
earinfection urine infections and lots more he has only grown 3cm in
12 months has stuby fingers only started walking at20 months has
behavrioural probs social probs sleeping probs if he sleeps at all
eat is anightmare very thick curly hair and being one of six
children they all have none curly hair he has been diagnoised with
noonans syndrome we live in england and there sees to be no support
groups i need help and info on this syndrome and cant seem to get
any inengland there was one group but its not up and running any
more please can anyone help us we are dealing with this on are own
and its very hard please there must be someone who can help us
shelley issott <email@example.com>
, england - Tuesday, September 23, 2003 at 05:57:23 (EDT)
Teresa Bolton <firstname.lastname@example.org>
NC USA - Monday, August 18, 2003 at 14:01:31 (EDT)
14 year old just diagnosed with Asberger's after lots of
speculation of other possibilities. I am looking forward to sharing
and support I already feel.
SC USA - Tuesday, July 29, 2003 at 19:44:32 (EDT)
Very informative and encouraging!My son is 12 and has NS plus
an associated attention deficiency. They are special children and I
would like to swop experiences with any one who feels the
Dave Weeks <email@example.com>
Gauteng South Africa - Wednesday, July 16, 2003 at 06:49:25 (EDT)
thanks for a great site, and list of
deborah new <firstname.lastname@example.org>
nj USA - Friday, July 11, 2003 at 10:31:01 (EDT)
l love this site
USA - Friday,
June 27, 2003 at 18:22:35 (EDT)
Very nice site. Informative!
TX USA - Wednesday, June 25, 2003 at 09:26:21 (EDT)
Ken and I had been all month counting down the days to this
months D.A.N.I.S.H. meeting. It was worth the wait. The conversation
and resources shared in the meeting gave me a newfound hope that
there really are reliable resources out there to help Ken I learn
how to reach and help the quality of life for our 19 year old son,
Karl. He is an amazing young man who deserves the best there can be
for him. Thank you so very much for the informative meeting and
genuine support of the entire group.The information obtained last
night has opened new doors of information and resources for us and
we are very thankful to all the resource contributions from the
group last night.
Paula Mitchell and Ken
TX USA - Friday, February 28, 2003 at 14:21:10 (EST)
My son has noonans syndrome if anynoe can help i would love
that. Please keep him in your thought and prayers and I will do the
same for you. Michelle Hill
Hood , Texas USA - Friday, February 28, 2003 at 12:30:16 (EST)
Martha Kate, thanks for heading up the great support group
meeting last Thursday evening! My 40 year-old brother will benefit
from the resources I've discovered through the DANISH families. Lots
to learn and share!
Rich Dunn <email@example.com>
TX USA - Friday, February 28, 2003 at 06:55:38 (EST)
My son is five years old. He has a dx of PDD/NOS. He is a
wonderful boy who is very bright, his challenges make him frustrated
and angry a-lot. I am just starting to explore some of the
resources. The more I read the more I wonder if I too might have
some of the aspects of the disorder. Social understanding and
difficulty with change are just some of the things. I am currently
in a Masters program in communications and I am doing some research
on Autism and non verbal communication. Any ideas or help would be
Fawna McWilliams <FawnaMcWilliams@aol.com>
WV USA - Tuesday, February 11, 2003 at 09:36:58 (EST)
Great website. I have a 13 year-old autistic son and live in
upstate NY Annie
Hills, NY USA - Tuesday, January 07, 2003 at 16:20:27 (EST)
I have a 13 yr. old son, diagnosed with asperger syndrome at
the age of 9. He is in the 7th grade and doing ok with school. For
the most part he is in regular classes. He is in resource English
because he has a difficult time putting his thoughts on paper when
he needs to, so we are hoping he can make progress in that area if
he gets a little more direct help. Just found this website so I am
looking forward to looking into it more!!
Tammy Kniffin <firstname.lastname@example.org>
TX USA - Sunday, January 05, 2003 at 19:23:50 (EST)
Hi, my nephew, who will be 18 soon, was tested by a school
psych a little over a year ago. The psych. mentioned a possible
diagnosis of Asberger's. But because he attends a Catholic high
school, there are no special ed. classes in which he could be
placed. What should his teachers be made aware of in terms of how he
learns best. He is a struggling student in most areas. Also, should
classmates be made aware of different charac. of a person with
Asberger's. He is having a very difficult time with some students
who are ridiculing him, to the point that he cannot wait to graduate
in June. Thank you for any additional help that you can
USA - Thursday, December 26, 2002 at 09:56:26 (EST)
I have a son diagnosed with Asperger'. He is 16 - I have a B
Ed degree and want to take courses, seminars, workshops that can
prepare me to help those with Asperger's. Contact me as soon as
possible with SUBJECT LINE -- ASPERGERS
Blaine Greenwood <email@example.com>
Alberta Canada - Tuesday, December 10, 2002 at 22:15:48 (EST)
Please alert me to any art therapy and music therapy books you
have found handy and not cumbersome. I certainly hope to help my
daughter in loving tap dancing as I do if she chooses!
elizabeth coss <firstname.lastname@example.org>
mi USA - Monday, November 04, 2002 at 16:06:40 (EST)
My son is 13 and has just been diagnosed with Asperger's. The
teachers at his school are asking for some very plain and direct
suggestions on how to get him to work harder-- anything I can give
to them to read????? Math seems to be really hard for him. He is
very verbal. We need help as to how to help his teaachers! Send
advise and suggestions - Please.
Ky, Kentucky USA - Tuesday, October 29, 2002 at 14:17:18 (EST)
I just dropped in from the VU. My son is 12 and in 7th grade.
I want him to graduate with a regular ed. diploma. I know he can do
it. I just need the school teachers to see that he just needs some
push. They are happy teaching him below gradelevel. So, I'm on a
journey to find help.
TX USA - Wednesday, October 16, 2002 at 02:36:35 (EDT)
Hey Girl, I sure missed you at TNSSG conference in MD. When
are we going to meet? I always find soo much inspiration from this
site. Thanks for being there for me in my dark days. Your 'Loony
Noonie', fair dinkum 'mate' from accross the 'pond' - Mich
Michelle Ellis (AKA Mich)
Nr London, Surrey
United Kingdom - Sunday, October 06, 2002 at 14:59:06 (EDT)
I am about to pull my son out of public school. He has
Aspergers syndrome is being picked on by school officials
everyday!Thankyou for this site
Richland Hills, TX USA - Friday, October 04, 2002 at 13:21:03 (EDT)
Just thought I'd check out the site and see what my Relatives
are up to, regardless of how distant. =)
Joshua Ferguson <YrAlterEgo@Yahoo.com>
Ca, Ca USA - Thursday, October 03, 2002 at 19:55:46 (EDT)
Thanks for letting me know about the local support group here
in my area. I am beginning to feel that I'm not all alone in this
search to help my child. Thank you for all you do....
TX USA - Thursday, September 26, 2002 at 19:41:51 (EDT)
Enjoyed your website. I found it to be very
Janice Widener <email@example.com>
USA - Monday, September 23, 2002 at 18:39:18 (EDT)
Martha Kate, I was showing off your site to my co-worker. Good
luck on your social skills speaking engagements. We laughed
knowingly since we spoke on that very topic in the days when we
presented at CEC conferences. Read some of your comments from others
and am curious since I grew up with you too. Who is Suzanne who
wrote such a glowing and accurate report of Kate and you? I just
can't think. Do you do presentations on memory loss too? ha Please
e-mail me the answer to the mystery person. Blessings to your
family, Glenda Sue
Glenda Sue <firstname.lastname@example.org>
Texas USA - Monday, September 16, 2002 at 16:41:16 (EDT)
I WAS DIAGNOSED AT NINE YEARS OLD BECAUSE OF MY WEBBED NECK
AND THE TWO HOLES IN MY HEART.OUR DOCTOR KNEW NOTHING ABOUT NOONAN'S
SYNDROME THERE FOR TOLD MY PARENTS NOTHING,NOW 29 I'M FINDING OUT
MYSELF AS I WASN'T REALLY TOLD WHEN I WAS A CHILD THAT I HAD A
SYNDROME, I WAS TREATED AS A NORMAL CHILD JUST A BIT OF EXTRA CARE
WHEN I HAD MY OPERATION AROUND MY 10TH BIRTHDAY.
LISMORE, NSW AUSTRALIA -
Friday, September 13, 2002 at 05:41:29 (EDT)
I HAVE JUST FOUND YOUR SITE,"GREAT" WE NEED AN AUSSIE CONTACT
FOR PEOPLE WITH NOONAN'S SYNDROME. I WAS DIAGNOSED AT NINE YEARS OLD
BECAUSE OF MY WEBBED NECK AND FOUND OUT THAT I HAD TWO HOLES IN MY
HEART, I HAD AN OPERATION.
Lismore, NSW AUSTRALIA - Friday, September 13, 2002
at 05:28:25 (EDT)
Muchas gracias por este sitio web. Me alegra comprobar que,
nosotros los afectados directa ó indirectamente por Noonan, tenemos
una postura activa para la difusion de este desconocido sindrome.
Alba Garcia Freire;NS, 4 años, estupenda.
Mª Jesus Freire <email@example.com>
Spain - Wednesday, September 11, 2002 at 17:51:21 (EDT)
It is so good to meet up with you again! Glad to see all is
Beth Bailey <firstname.lastname@example.org>
TX USA - Sunday, September 01, 2002 at 23:28:51 (EDT)
HI MK, So glad to be at your site! Where are your photos?
You're wonderful! Love, Jean
Arbor environs, Michigan USA - Sunday, September 01, 2002 at
Hi thanks for having this site on here.......a friend of mine
.......well i call her my sis.....her new baby nephew dominic has
just been diagnosed with Noonans .......he has to have heart surgery
in the very near future........and i found this site and sent it to
her ....cause they are trying to learn about this and i had never
heard of this before......Dominic is finally starting to gain a
little weight and doing good........he is a lovey bunny is what we
call him .........God Bless all
nc USA - Friday, August 02, 2002 at 14:15:21 (EDT)
i feel bad for the kids
ca USA - Monday, July 29, 2002 at 22:49:08 (EDT)
For all of you who are out there appreciating Martha Kate and
Katie, let me tell you a little more. You see, I've known MK since
6th grade. We shared secrets and parties and teenage tears and
college and marriage ceremonies and most of all... respect. Yes,
that's what MK and Katie are all about... respect. Respect for life,
respect for God, respect for others, respect for dignity and
learning, respect for music and color, respect for diversity,
respect for integrity. When Katie was a tiny baby and kicked and
gurgled on a blanket on the floor, I could see the planning and the
hopes and the joy in Martha Kate's eyes. I shared her enthusiasm for
the new little life. Neither of us knew of Katie's impending
struggle. But it would not have mattered. MK's love for her
daughter, her devotion, and her dedication came naturally with her
love. That's what she's telling the world. Yes, you'll eat OREO's in
the closet....but look at the results. Katie, my friend, you are
your mother's child... talented, beautiful, charming, energized,
loving, joyous, and respectful. I will love you both forever. (and
Daddy, Dennis, too) Suzanne
, Fl USA - Monday, July 08, 2002 at 21:35:40 (EDT)
Wow....I actually have spoken to you and can say we have
exchanged ideas. Congrats on your new book and thank you for the
TX USA - Saturday, July 06, 2002 at 15:01:50 (EDT)
Hey Auntie, Just wanted to let you know we are impressed with
your work. Keep it up. Jeremy and Amy
Jeremy Artho <email@example.com>
Kyungnam Korea - Friday, July 05, 2002 at 22:43:26 (EDT)
One word describes you Incrediable!
Dana Timmons and son Dezmond (NS) <Danatimmons@aol.com>
NC USA - Friday, July 05, 2002 at 17:15:39 (EDT)
you are so multi-talented. It is cool.
Stanley esq <firstname.lastname@example.org>
Tx USA - Tuesday, July 02, 2002 at 07:59:56 (EDT)
My 7 1/2 yr old grandson was diagnosed with Noonan's Syndrome
in 1999. We struggle daily with many issues. I look forward to
reading everyone's note.
USA - Thursday, June 27, 2002 at 09:48:58 (EDT)
I just had a child diagnosed with NS and your website helped
me to learn more about it. Thank you so much. I will definetly be
returning for more info. Thanks again
Tammy Johnson <email@example.com>
IN USA - Monday, June 24, 2002 at 17:30:50 (EDT)
i do tap dancing it is fun
dunedin, n.z new zealand - Thursday,
June 06, 2002 at 22:08:51 (EDT)
Thank you so much for speaking with me. I have so much more
hope now. I appreciate your sensitivity and direction.
OH USA - Monday, May 20, 2002 at 10:45:24 (EDT)
Thank you for having this site! I have a lovely dother, born
1999, with Noonan's syndrome, so it is important for me to visit a
site like this.
Per Lidar <firstname.lastname@example.org>
Sweden - Friday, May 17, 2002 at 17:10:48 (EDT)
Thank you from the bottom of my heart! Our newly almost
diagnosed son and our other two children will greatly benefit from
the information you put out here. My husband, who never had a clue
in how to deal with our severly difficult situation, now has some
hope. I am witnessing his and my own progress in learning some of
the more subtle ways in which to deal with difficult behaviours. We
need more people like you!
falls, NY USA - Friday, May 17, 2002 at 10:37:32 (EDT)
It was a pleasure to meet you, too, and it's nice to know
there is a place i can go to see what you're up to!
Sabine Mora <email@example.com>
TX USA - Saturday, May 11, 2002 at 18:44:47 (EDT)
THANK YOU!!! You are WONDERFUL and such a blessing! My ears
are always open and waiting to hear what you have to say next! God
bless you, Martha Kate. -Abril
TX USA - Friday, May 03, 2002 at 12:17:34 (EDT)
Love your website. I am hoping that your book will help me
with my daughter. You're one of my last hopes.
Stephen Angelella <Jock227@aol.com>
NY USA - Wednesday, May 01, 2002 at 19:08:00 (EDT)
Hi MK, just dropped by to see what wonderful stuff you have
going on. You are such an amazing and giften lady! I am so glad I
had the opportunity to work with you and know you.
UT USA - Tuesday, April 30, 2002 at 19:05:06 (EDT)
Always looking for more information
Wn. USA - Tuesday, April 23, 2002 at 18:46:08 (EDT)
MK Just found your web site haven't read Book yet the title
sounds really good
ONt Canada - Saturday, April 20, 2002 at 21:15:16 (EDT)
Hey, Mrs. Martha Kate! I love your site! I had no clue about
alot of the things that you talk about! Thanks for helping me learn
more about AS and all those other initialed diseases. (See my poems!
http://www.poetry.com/ [search for Pool, Julia and Pool, Rose] ) I
love your class at AG!
† Julia Pool
DFW, TX USA - Friday, April 19, 2002 at 22:59:24 (EDT)
The cd is getting passed around at our school among
counselors, nurses, teachers and librarians. It is great!
Temple, TX USA - Wednesday, April 17,
2002 at 16:45:39 (EDT)
Thank you for giving of yourself.
Jan Irvine <firstname.lastname@example.org>
AZ USA - Friday, April 12, 2002 at 11:19:28 (EDT)
I love your site. I got some good ideas off of it. I teach
school and had some questions. I also have a child with NS. I
amgoing to read your books.
ohio USA - Monday, April 08, 2002 at 19:13:53 (EDT)
I am so pleased that I have finally learned to use the internet and my local library as resources for helping my Aspergers child! Your website is great!!! I look forward to reading your books!! Thanks for being here.....
Washington Court House, Ohio USA - Saturday, February 09, 2002 at 14:04:14 (EST)
I enjoyed your website and would love to review one of your books in our Newsletter(5000). We are a nonprofit family resource center. Keep up the good work!
Elaine Butler, Librarian & Parent <email@example.com>
San Francisco, CA USA - Wednesday, January 23, 2002 at 13:14:45 (EST)
I like your site very much. I hope that many people find it.
USA - Sunday, January 20, 2002 at 08:37:45 (EST)
i like ur web page very much
florene meservey <firstname.lastname@example.org>
dover-foxcroft, me USA - Wednesday, November 14, 2001 at 21:02:29 (EST)
Hi! I just discovered the Oreo book two weeks ago
and found your website today. Thanks for sharing
your positive insight into the world of AS with
other Moms. The Night the Moon Was Lonely was also
beautifully written. I look forward to reading your other
Dallas, TX USA - Thursday, September 13, 2001 at 13:10:59 (EDT)
I found your page from Jim's--it's like meeting an old friend! Jim also brought me a copy of your book. Keep up the good work!
Eugene Brink <email@example.com>
Colorado Springs, CO USA - Wednesday, September 12, 2001 at 10:26:33 (EDT)
Just dropped by, from your URL on an email in the [AS] list. Interesting how you put the list of options on each page without using Frames. Congratulations! -Patty
Patricia E. Clark <firstname.lastname@example.org>
Kennesaw, Georgia USA - Tuesday, August 28, 2001 at 10:53:25 (EDT)
Mk, I read OREO in one sitting, what can I say, it was GREAT, I couldn't put it down, and was so helpful (even to me without kids!). When biting into the OREO at the meeting in MD, I thought of you, I can't wait to meet you girl.. next year, next year! Thanks for all you do...
Michelle (Mich) Ellis <Michellis@mkellis.fsnet.co.uk>
Surrey Near London,, UK - Wednesday, August 01, 2001 at 16:38:27 (EDT)
I want to order your "OREO" book. I will do so through TNSSG. Interesting site. Thanks for sharing your insights.
Karen Schottenstein <email@example.com>
Denver, CO USA - Wednesday, July 25, 2001 at 22:49:56 (EDT)
Mstha Kate: Wonderful to see you again and know more about what you are doing. Love all of your stain glass work at St Francis but I know the books and the help they will give are even more important, will reach and help more people Love you and your good family so much. Hugs especially to Kate. Alice
Alice Adams <firstname.lastname@example.org>
Temply, Texas, USA - Thursday, July 19, 2001 at 14:20:07 (EDT)
I really like your website. How did you get it set up? I have been having no luck in getting mine set up. Would you mind emailing me with some pointers, I would appreciate it. And I also want to thank you for the copy of the OREO book that I received from Holly in Austin when we went there for the Texas Noonans Meeting.
Melody Burchett <email@example.com>
Abilene, Texas USA - Wednesday, July 18, 2001 at 11:40:53 (EDT)
Dear MK, thank you for putting us into words and for giving me a good friend (you, of course)!
Much Love, Keri :-)
Keri Isbell <firstname.lastname@example.org>
Seattle, WA USA - Thursday, June 21, 2001 at 23:42:33 (EDT)
How is it that I have know you so long and was totally unaware of your wonderful talent? I will be buying "oreo" ASAP. Don
Don Jackson <email@example.com>
Arlington, TX USA - Wednesday, June 20, 2001 at 13:56:09 (EDT)
I was just browsing through your guestbook and agreeing with all the kudos. Didn't realize you gave speeches also. I just finished reading "The Answer is God" about Dale Evans and Roy Rogers life. It is a real inspiration. They had a mongoloid child plus adopted several handicapped children. If you haven't read it I'd recommend it. Love you, Aunt Bernice
Bernice Maloch <firstname.lastname@example.org>
Livermore,, CA USA - Monday, June 18, 2001 at 23:15:52 (EDT)
MK, when I bit into my oreo at the 2000 conference, I thought of you and all your challenges, thank you for sending me your book back when you did, it has helped me so much since then!! hang in there, and remember to take so time for you too!
Stacey Michaels <email@example.com>
Melbourne, VICTORIA Australia - Monday, April 23, 2001 at 11:09:36 (EDT)
Now I will just HAVE to go out and get those books. They sound so interesting. It's a shame we have never met. Why don't we all have a huge family reunion....and everybody go. Love ya!
Natasha Lynn Downey <firstname.lastname@example.org>
Fayetteville, AR USA - Wednesday, April 11, 2001 at 12:11:11 (EDT)
Great website. Had no idea my cousin, Dennis had married so well. Its a shame we have wasted so many year with our inattentiveness to the people who could be a true blessing to one another. Lot of things to make up for.
Love to you.
Stewart Downey <email@example.com>
Overland Park, KS USA - Monday, April 09, 2001 at 19:12:06 (EDT)
good site, i work with young children and adolesents who have learning difficulties and behavioural needs on the border of wales (macintyre care) looking forward to reading more about the things you write about.
cheers anyway del
kington,herefordshire, herefordshire uk - Sunday, April 01, 2001 at 16:49:04 (EDT)
it seems we have a lot in common. you are much more talented than me.keep up the good work.
vanessa tindall <firstname.lastname@example.org>
trinity, texas USA - Wednesday, March 14, 2001 at 23:33:10 (EST)
I love your web page. Alone in the lunch room makes me cry. I will need to get your book TAP DANING in the night.
I have loaned my OREO book to several parents who love it as much as I. Thank you so much for sharing with all of us.
Becky Morse <email@example.com>
Greenville, ME USA - Sunday, February 18, 2001 at 14:13:02 (EST)
Very nice and empressionable website, cousin Martha. I am so looking forward to learning more of our family! Hope to read your book soon!
Barnett, Mo. USA - Friday, December 29, 2000 at 23:27:01 (EST)
What a great web site. Thank you for e-mailing me the info. You are an inspiration.
Sacramento, CA USA - Tuesday, December 05, 2000 at 01:50:28 (EST)
WOW! I am so impressed cousin Martha, I did not know in finding you I would find such a grand person, author, speaker, and beautiful person. I love your website.
electra, tx USA - Monday, December 04, 2000 at 11:17:31 (EST)
I am very impressed with your website, Martha K. Never knew we had an author amongst us. Hope to read your book soon. Sounds wonderful! You are a special lady indeed! Congratulations!
Austin, Tx USA - Sunday, November 19, 2000 at 21:30:10 (EST)
Hey Martha Kate!
Abby and Sibley have urged me to explore your site. It looks great! Hope you're happy and busy!
Lookin' forward to seeing the comic version of Tap Dancing!
USA - Saturday, November 18, 2000 at 08:27:33 (EST)
Hi MK--your website is LOOKING GOOD! I like the photo of you--glad to see you are still hard at work! With love from Abby and GOS.
Abby Collins <firstname.lastname@example.org>
Stratham, NH USA - Wednesday, November 15, 2000 at 09:54:02 (EST)
Its me your TNSSG friend again. Just popped back in again .. looks as great as ever! So sorry that I missed you at the conference.. maybe next time? Many hugs.. and we will meet soon :) Mich xx
Redhill, Surrey U.K - Wednesday, November 08, 2000 at 15:40:58 (EST)
This is great, You and Kate are great. See you at the basketball courts! God bless you and yours.
Debbie Rogers <email@example.com>
Grapevine, Tx USA - Wednesday, September 13, 2000 at 22:15:57 (EDT)
Very nice site MK, but I wouldn't have expected anything less of you! (TNSSG friend from Virginia).
Sue Walker <firstname.lastname@example.org>
Richmond, VA USA - Friday, March 24, 2000 at 18:11:43 (EST)
I enjoyed visiting your website and plan on ordering your book soon. I loved the lunchroom poem. God Bless!
Your TNSSG Friend,
Karen Khal <email@example.com>
Henderson, Nv USA - Thursday, March 23, 2000 at 18:50:58 (EST)
Brilliant web site MK! You are one amazing lady.
You ara a real inspiration to me in my dark days. Thanks for all the support!
Near London, Surrey U.K - Wednesday, March 22, 2000 at 14:44:59 (EST)
Wonderful book that I couldn't put down! Bought one for a friend too! Thanks for sharing all of your knowledge and experiences with us all!
Kelli Gerrity <firstname.lastname@example.org>
Regina, SK Canada - Wednesday, March 22, 2000 at 06:27:03 (EST)
Neat website Martha Kate! Linda and I will continue to keep all of you in our prayers.
Steve Eustace <email@example.com>
Euless, Texas USA - Sunday, February 06, 2000 at 20:37:12 (EST)
Je ne connais pas votre livre mais j'aurais bien aimée le lire,J'ai trouvé votre site dans liste serv.Claudia Gonzalez
Gonzalez Claudia <firstname.lastname@example.org>
Papeete , Tahiti Polynesie Française - Friday, February 04, 2000 at 12:11:03 (EST)
I am Mary Ann's sister in law and read your book while visiting her a few weeks ago. WOW I teach at a small private school for children with learnng differences and have some very special parents I can't wait to share you book with. Keep up the good work and I look forward to possibly meeting you soemday. Mary Ann has spoken of you often. Next step ordering you books for our school library and also as gift for some of my parents. Thanks Gaye
Gaye Webster <email@example.com>
Longview, Tx USA - Friday, January 28, 2000 at 23:15:48 (EST)
I read Oreo in one sitting and wept. Having known Kate and your family since the very day of her arrival, I just marveled at what has come out of this situation. Always knew you were creative, gentle, and extraordinarily talented. But I would have never imagined you would emerge as an author and speaker. As in so many cases, so much would go unknown if it were not for a mother following her instincts. Congratualtions on a job well done--I mean the book and the way all of you have evolved to live with the flavorful aspects of your lives.
Mary Ann Webster <firstname.lastname@example.org>
Dallas, TX USA - Friday, January 28, 2000 at 16:56:00 (EST)
The Oreo book is wonderful and so are you. Really enjoyed reading it. Hope that you and Joshua will finally meet one day. Hope your Aunt is better. Take care and keep up the good PR work.
Omaha, NE USA - Sunday, January 23, 2000 at 14:49:29 (EST)
Hi MK, ItWow, you have been busy!! Who cleaned up your desk? and got you so organized? Kate? I need one of those:-) Congrats!
Plano, TX USA - Monday, January 10, 2000 at 13:38:41 (EST)
I always said you were a clever girl..... hope to buy a book (or two) in the new millennium
Best Wishes your UK friend Rosalyn
Rosalyn Lord <email@example.com>
Rossendale, Lancs, U.K. - Thursday, December 30, 1999 at 10:34:34 (EST)
Just found your website through your Christmas Letter. I think it is great!!! I really enjoyed reading "Oreo". Thanks for the copy. You did a wonderful job showing the reality of challenges you and your family have faced. But most of all it gives others the insite of how to deal with the challenges. GREAT JOB!!!!
Joette Hanna <firstname.lastname@example.org>
Dallas, Texas USA - Monday, December 27, 1999 at 15:26:00 (EST)
Very nice, very warm. II have heard many GREAT things about you! Are you in Texas?
nancy mandell <email@example.com>
Plano, TEXAS USA - Friday, December 10, 1999 at 11:23:26 (EST)
Congratulations and best wishes from Alexiya and
joanne halvorson <firstname.lastname@example.org>
Astoria, OR USA - Friday, December 10, 1999 at 11:10:28 (EST)
HavenMartha Kate - just wanted to say Hi. The next step is to figure out how to get your book. Jim says itGorgeous web-site MK! You are an inspiration as always! Guess weI AM proud of you, MK. NOW--I hope I can commission a stained glass window.
Your talents and your warmth shine brightly. Your OREO pal, Teri
Tarzana, CA USA - Wednesday, December 01, 1999 at 01:25:40 (EST)
We love you and your work and the whole family.
Keep up the good work, your are an inspiration.
Floydada, Tx USA - Tuesday, November 30, 1999 at 20:38:59 (EST)
Thank you for your Oreo book, a true labor of love!! I love your web--WhoHi, MK!
Just got in from our Thanksgiving trip, opened our e-mail and chose to read yours only--what a treat! The poem is especially flavorful--a new favorite word! You go, girl!
Hereford, TX USA - Monday, November 29, 1999 at 01:34:24 (EST)
Hi Martha Kate, IMK, you never cease to amaze! Congratulations and kudos!!!!!
Temple, TX USA - Friday, November 26, 1999 at 00:55:33 (EST)
I knew you could do this - This is just the beginning...
Coppell, TX USA - Thursday, November 25, 1999 at 20:08:29 (EST)
Good web site. DonI love your website!
... but somehow, I did expect to see more color!
Euless, Texas USA - Wednesday, November 24, 1999 at 23:39:30 (EST)
MK, you are so multi-talented. Keep up the good work.
White Deer, TX USA - Wednesday, November 24, 1999 at 22:02:46 (EST)
Congratulations!!!!!!!!I love your book, and you. Your younger brother, Jim
Wilhemina Zukranzagawurzrtraminer <email@example.com>
Sonoma, CA USA - Wednesday, November 24, 1999 at 19:59:23 (EST)
I love you and your website.
Deltona, Fl USA - Wednesday, November 24, 1999 at 16:54:19 (EST)
Back to my Homepage